Registration of a rare disease patient. Access to treatment for rare diseases in Bulgaria. This site complies with the HONcode standard for trustworthy health. Save the date for the Sixth National Conference for rare diseases and orphan drugs. Submission of proposals and request to the Commission on Rare Diseases.

List will also search for matching abbreviations and alternate names. List will also search for matching abbreviations and alternate names. Only 343 of the 1,160 conditions in the search database have communities activated. We are processing them alphabetically. If you wish for one to be fast-tracked, please use the contact form. If there is a rare disease we do not have in the search database, then please let us know about that, as well.

You need to upgrade your Flash Player. Keep up to date with our work, follow us on Twitter. Rare Disease page now on. The Northern Ireland Rare Disease Partnership. Annual reports and AGM papers. Living with a Rare Disease. Stories from Patients and Families.

Yeager takes the win at Michaux.

Rare Disease Day 2015, February 28. What is Rare Disease Day? About our official partners. What is a Rare Disease? Living with a rare disease is the theme for 2015. The Official Video for Rare Disease Day 2015. Highlights from past Rare Disease Days. Join us on our Social Media! PRIMERAS JORN.